Another lovely picture of art in a doctor's office! Met with the surgeon who did my thing at the beginning of March. He advised me to go on meds & not have kids until he knows if the meds are helping me or not. These two particular meds take 6+ months to build up the proteins or something. He really made me angry, because he was only thinking about one body system. He doesn't care how it will affect my problems that my other doctors treat. Why can't I just get all my doctors who treat various parts of my body (and perhaps a shrink to take care of me while they all yell) to sit around a table and help me make the best decisions? It seems like every medicine that one of them wants me to take is something another one is telling me NOT to take. (Heck, even one of the meds the urologist prescribes is on the "don't ingest this ingredient" list that he himself gave me!) I left there very angry today, because I felt like he didn't listen to a word I said, and didn't answer any of the questions I waited 3 weeks to ask. And because I got flustered, I didn't really realize that until he was gone.
So for now, this is the last time I will be seeing this particular doctor. I have an appointment with a different urologist at Hopkins in a couple weeks, and they claim that they work as a team of specialists to figure out the best solution. Let's hope they are world famous for a reason. :) Oh, and I think I'm bringing a written paper with my questions and concerns and perhaps even my husband, so that I don't leave feeling so mad!
The good news is, I *am* having a little reduction in symptoms this week. AND it is not snow weather. AND we're buying a house in 4 days. AND it's almost a really long weekend. All of these are good things!
Gah! I hate that. I share your pain. All my doctors just want to concentrate on curing their specific part of my body, but fail to think about my body as a whole. I hate that it always has to be so complicated with me the supposedly less educated person in the room having to play go between because despite the fact that they send around their reports to each other there really is no real coordination between all the specialists.
ReplyDeleteAnd yeah gotta love docs who contradict themselves. My GI tells me something different every time I see him. Luckily I'm educated enough to ignore the fact that he's all over the place. I really need to find a new GI, but since I've been healthy enough in that regard and he's already the third one I've had in 5 years I haven't been motivated to find yet another one.